{"product_id":"one-in-thousands-my-life-as-a-rarity-9788743030768","title":"One in Thousands: - my life as a rarity","description":"Ehlers-Danlos Syndrome is probably the most overlooked physical handicap in the world. A genetic hiccup changes your body completely, and as you look \"normal\", nobody understands why you can't BE normal. Not even your doctor, who may have forgotten all she ever heard about the rare syndrome. The author has fought for a \"normal\" life for 77 years. It didn't become normal, but both interesting and meaningful in spite of her invisible enemies: Her own shame of not being like everybody else, and an environment - including the medical world - that was convinced her problems \"were all in her head\". Her kind of EDS, the classic, only appears in 1 in 20.000 people. Some believe as few as 1 in 40.000. Other variations - there are 13 in all - are far more common. You may have heard of people who suffer from one of them. You may even know one.\u003cbr\u003e\u003cbr\u003e\u003cb\u003eAuthor:\u003c\/b\u003e \u003ca href=\"https:\/\/sureshotbooks-com.myshopify.com\/search?type=product%2Carticle%2Cpage\u0026amp;q=AUTH-16100555\"\u003eDorrit Barrett\u003c\/a\u003e\u003cbr\u003e\u003cb\u003ePublisher:\u003c\/b\u003e Books on Demand\u003cbr\u003e\u003cb\u003ePublished:\u003c\/b\u003e 04\/26\/2023\u003cbr\u003e\u003cb\u003ePages:\u003c\/b\u003e 206\u003cbr\u003e\u003cb\u003eBinding Type:\u003c\/b\u003e Paperback\u003cbr\u003e\u003cb\u003eWeight:\u003c\/b\u003e 0.50lbs\u003cbr\u003e\u003cb\u003eSize:\u003c\/b\u003e 8.00h x 5.00w x 0.47d\u003cbr\u003e\u003cb\u003eISBN13:\u003c\/b\u003e 9788743030768\u003cbr\u003e\u003cb\u003eISBN10:\u003c\/b\u003e 8743030769\u003cbr\u003e\u003cb\u003eBISAC Categories:\u003c\/b\u003e\u003cbr\u003e- \u003ca href=\"https:\/\/sureshotbooks-com.myshopify.com\/search?type=product%2Carticle%2Cpage\u0026amp;q=CAT-BIO\"\u003eBiography \u0026amp; Autobiography\u003c\/a\u003e | \u003ca href=\"https:\/\/sureshotbooks-com.myshopify.com\/search?type=product%2Carticle%2Cpage\u0026amp;q=BISAC-BIO026000\"\u003ePersonal Memoirs\u003c\/a\u003e\u003cbr\u003e\u003cp\u003e\u003ci\u003eThis title is not returnable\u003c\/i\u003e\u003cbr\u003e\u003c\/p\u003e","brand":"Books on Demand","offers":[{"title":"Default Title","offer_id":44395034804461,"sku":"9788743030768","price":40.63,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0550\/8097\/6621\/products\/img_79a65573-4308-4538-8965-5cd9f2a8f62b.jpg?v=1699550233","url":"https:\/\/sureshotbooks.com\/products\/one-in-thousands-my-life-as-a-rarity-9788743030768","provider":"SureShot Books Publishing LLC","version":"1.0","type":"link"}